Not Giving Up

I am thankful:

~ that my baby girl had a great birthday…but i am NOT OK that she is SIX! I still can’t wrap my mind around it. She is the spiciest little firecracker, but also the sweetest at the same time. She seemed to love sharing her birthday with the joyful celebration of Resurrection Day, and we all enjoyed her cake AND pie around the campfire.

(Somebody also lost their very first tooth!)

~ thankful that even if it was for just a moment, I had all my Loves together.

~ thankful that we pretty much OFFICIALLY BECAME A FARM last week, adding 3 goats, 13 chicks, AND A DUCK to our menagerie. We are learning as we go, but the kids are definitely loving all their new babies.

~ for our new chicken coop, just waiting for the chicks to grow large enough to graduate from the brooder. Love our little barnyard setup as it slowly begins to take shape.

~ for a fun day representing Gold Network ETX at the Jr. League of Tyler’s “Touch a Truck” event. Sawyer had a blast looking at all the various classic cars, community service vehicles, and construction equipment…even a helicopter landing! We we were able to share the mission of Gold Network with lots of friends from the community, and even met a new HERO family.

Our dear friend and HERO, Trenn, achieved his ultimate healing in the arms of Jesus this week.

He battled long and hard through unspeakable pain and setbacks, and did so with courage and grace. He was loved by everyone who had the great privilege of learning his story. Please pray for his dear family, as they learn to navigate life without the boy that has been at the center of their world. Pray for the doctors and nurses who did everything they could for him, and provided such loving and compassionate care for the boy they fell in love with. People don’t really think about how deeply and personally they feel these losses.

Oh, how I hate cancer. Losing another friend never becomes routine. It doesn’t get easier.

I keep trying to make myself post that Gold Run registration is open. But I stop myself before I do it. Because WHO CARES!? A mama is crying herself to sleep tonight without her son. Who cares about a STUPID 5K!

But then I remember why we do what we do. We have to raise awareness. For Trenn. For Sophie. For Ceely. For Eric and Olivia and Michael and every other kid we’ve lost. And for Sawyer and Mason and Aneesa and every kid who’s still here. We have to raise money to take care of these families. Raise money for research. Keep fighting for training and better care for our children. It’s NOT A STUPID 5K. It’s a mission, a God-given ministry to families that need hope.

We are not giving up. EVER.

We’ve changed our name from Tyler Gold Run to East Texas Gold Run, to better reflect the broader community we seek to serve. Join us September 23, 2023. Run. Or walk. Or donate. Registration is open. Help us make a difference.

https://www.active.com/tyler-tx/running/distance-running-races/east-tx-gold-run-2023

Thanks for giving thanks with me.

“You have taken account of my wanderings; Put my tears in Your bottle. Are they not in Your book?” (Psalms 56:8)

“The Lord is near to the brokenhearted And saves those who are crushed in spirit.” (Psalms 34:18)

“Let us not lose heart in doing good, for in due time we will reap if we do not grow weary.”(Galatians 6:9)

Pure Gold

I am thankful.

For God’s favor.

For kindness.

For people who are generous with their time, their gifts, and their resources.

For fellowship.

For new friends and old friends.

THANK YOU to everyone who came to Tyler Gold Run, who donated, who volunteered, who helped behind the scenes, and who prayed. You have truly made a difference by going gold.

September is almost over. Our mission is not.

Thanks for giving thanks with me.

“He told them, “The harvest is plentiful, but the workers are few. Ask the Lord of the harvest, therefore, to send out workers into his harvest field.” (Luke 10:2)

“David also said to Solomon his son, “Be strong and courageous, and do the work. Do not be afraid or discouraged, for the Lord God, my God, is with you. He will not fail you or forsake you until all the work for the service of the temple of the Lord is finished.” (1 Chronicles 28:20)

“Let us hold unswervingly to the hope we profess, for he who promised is faithful. And let us consider how we may spur one another on toward love and good deeds, not giving up meeting together, as some are in the habit of doing, but encouraging one another—and all the more as you see the Day approaching.”(Hebrews 10:23-25)

All Systems GOLD

I am thankful:

~ for a delicious traditional gyro smothered in tzatziki sauce.

~ for a crisp, fresh new candle.

~ for my new diffuser running nonstop with eucalyptus oil.

~ for new Tyler Gold Run shirts! Always exciting to open the boxes and see the latest design. And it doesn’t hurt that I have the cutest models in all the land!

~ for a week of all things GOLD: hours of putting out Tyler Gold Run signs, Run Committee meeting, radio interview, speaking to 3rd graders about Gold Network and Childhood Cancer Awareness Month,

and for the arrival of my long-awaited custom GOLD glitter chucks!

~ for the conquering of an IMPOSSIBLE SATURDAY. Talk about a day when we needed a few clones! We had one sister with a cross country meet in Longview at 8am. One sister with a volleyball tournament in Gladewater at 8:15am.

And mom had Tyler Gold Run swag bag filling in Tyler at 9am.

SuperDad expertly shuttled the girls where they needed to be, and the rest of the Tribe helped me. Then we headed to the barn to hang sheet metal for 9 hours! Days like that harshly remind me of my age. But God!

~ for wonderful fellowship with dear friends at church and afterwards. What an awesome gift.

We are all systems GOLD this week. Speaking to schools, several interviews, last minute details, coordinating volunteers, and every big and small detail leading up to our 8th Annual Tyler Gold Run 5K. I can’t believe it’s been 8 years! What a ride!

We’ve learned so much and met the most incredible people along the way. I will never understand why Sawyer got cancer, but I will never stop thanking God for the undeniable beauty He brought from those painful ashes. You can learn more about Gold Network of East Texas or register for the run here. Local or not, runner or not, you can make a donation at any time via our website. Do it for Sawyer. Do it for Bristell. Do it for Sophie. Do it for all the children around the world who need someone to stand up and say that kids with cancer need better care and more funding. Together we can make a difference.

Hope to see lots of you Saturday!

Thanks for giving thanks with me.

“Therefore, my dear brothers and sisters, stand firm. Let nothing move you. Always give yourselves fully to the work of the Lord, because you know that your labor in the Lord is not in vain.” (1 Corinthians 15:58)

“Speak up for those who cannot speak for themselves, for the rights of all who are destitute. Speak up and judge fairly; defend the rights of the poor and needy.” (Proverbs 31:8-9)

Too Short to Waste

I am thankful that this life is not all there is.

This week one of our brave and beautiful HEROES finished her battle and leapt with joy into the arms of Jesus.

Bristell, aka Bristell Brave, fought cancer not once, not twice, but THREE TIMES. Her parents and her doctors did everything they could, but her cancer was aggressive and devastating.

Today her family celebrated her short but inspiring, joy-filled life and laid her earthly body to rest. Family, friends, and her fiercely loyal Tribe of supporters wore orange (the ribbon color for leukemia) to honor the memory of the vivacious little princess that we had all fallen in love with.

Have I ever mentioned how much I hate cancer?

I look at my boy, with inextricably intertwined gratitude and guilt for his healing. I think of how many friends he has lost. Micah, Anna Luisa, Sophie, Ceely, Lucas, Noah, Harold, Brock, Luke…

But oh, how I love Jesus.

He is the Way, the Truth, and the Life. The ONLY door to life everlasting, where there are no more tears, no more sorrow, no more cancer.

Please pray for Bristell’s family. They know she’s whole and healed and dancing with Jesus. But there will always be a gaping Bristell-sized hole in their hearts until they are reunited one day.

Love your people well. This life is short. Too short to waste. Trust Jesus as your Savior before it’s too late.

Thanks for giving thanks with me.

“Jesus answered, “I am the way and the truth and the life. No one comes to the Father except through me.” (John 14:6)

“Remember your word to your servant, for you have given me hope. My comfort in my suffering is this: Your promise preserves my life.” (Psalms 119:49-50)

“Then I saw “a new heaven and a new earth,” for the first heaven and the first earth had passed away, and there was no longer any sea. I saw the Holy City, the new Jerusalem, coming down out of heaven from God, prepared as a bride beautifully dressed for her husband. And I heard a loud voice from the throne saying, “Look! God’s dwelling place is now among the people, and he will dwell with them. They will be his people, and God himself will be with them and be their God. ‘He will wipe every tear from their eyes. There will be no more death’ or mourning or crying or pain, for the old order of things has passed away.”” (Revelation 21:1-4)

September is Coming…

I am thankful:

~ for the yummiest perfectly toasted cranberry Einstein Bagel.

~ for everyone (even me) settling in to the school routine. This little nugget is loving her class SO MUCH! She says she especially loves the naps and “a-spanish.”

~ for a super fun evening of fellowship with our church Women’s Ministry painting at Pinot’s Palette.

~ for NO MORE PUPPIES IN MY HOUSE!!! Pups #6, #7, and #8 found their families early this week.

#8 (aka Blue Boy, now named Rusty) was lone wolf for a few days until his new mama could drive in from Laredo, so he got some extra special treatment. This was a much more challenging litter, with the new smaller surroundings, brutal summer heat, and less than ideal timing during back to school. SO THANKFUL to have “been strong and courageous and done the work” and to now have it behind us!

~ for Josh’s Father’s Day gifts getting lots of use: his noise canceling headphones, equipped with Bluetooth AND AM/FM tuner, perfect for listening to Texas Rangers Baseball while he mows.

And his stackable scaffolding, which makes the continued process of building our barn possible. (Still not a fan of heights though!)

~ for our boys’ joy at finding creatures out at the farm.

MOST creatures anyway!

This little feller was NOT welcomed, and was met SWIFTLY with his demise!

~ for Kora’s very first Cross Country meet. We all got up at an ABSURD hour for a Saturday morning to have her an hour early for a meet an hour away! I’ve never even attended a Cross Country meet before! It was a great experience for all of us, and special to be there for Kora’s very first activity. I failed miserably at getting pictures, but she ran hard and did great. We are so proud of her!

~ for a fabulous treat, lunch at the world famous Dairy Palace in Canton on the way home.

~ for more hard work at the farm. I’m so worn out, my TIRED IS TIRED. Josh didn’t earn the nickname “Mr. Giddyup” for nothing. I’ve never been so thankful for Mondays in my life – because I get a break!

It’s a big week. Tuesday Gold Network of East TX will host our annual Go GOLD ETX event on the Downtown Square to kick off Childhood Cancer Awareness Month. It’s always such a special evening to honor our HEROES and cheer them on as they walk the gold carpet with their families. And a sobering one as we see the impactful display of all our kids on the ever-expanding Wall of HEROES, and when we release balloons for the friends we’ve lost along the way. Please join us if you are local: 6:30-8:30pm on the Tyler Downtown Square.

And then it’s September.

I can’t believe I’ve been blogging now for 8 years, since Sawyer’s cancer diagnosis turned our world upside down. I’ll never forget God telling me to thank Him while laying on that vinyl couch next to the hospital crib where my baby was receiving chemo.

THANK HIM? But I did. And it changed me. And I’ve been thanking Him ever since, sometimes freely and sometimes completely against my will. As much as I hate cancer and mourn all that Sawyer was forced to endure, I am grateful for the mission and ministry that was birthed from that excruciating season of suffering.

In 2015, we found 9 families in East TX that had faced childhood cancer. 7 years later, we have connected with more than 100. Which is simultaneously wonderful and devastating. BUT GOD.

Will you GO GOLD with us this year? Follow Gold Network of East Texas on social media to learn more about childhood cancer and how YOU can make a difference.

And thanks for giving thanks with me.

“Bear one another’s burdens, and so fulfill the law of Christ. (Galatians 6:2)

““Blessed are the poor in spirit, For theirs is the kingdom of heaven. Blessed are those who mourn, For they shall be comforted.” (Matthew 5:3-4)

Our Peace

I am thankful:

~ for a decadent breakfast at my all time favorite place, First Watch on “Breakfast Day” with Dad and TK. Their pillowy waffles and spicy maple cayenne bacon are what I dream about.

~ for an awesome week for Cooper on Go Week. Each GCS High School grade goes on a different class trip, and Juniors spent the week touring historical sites from Memphis and Nashville, Tennessee back to Dallas. Such an amazing opportunity.

~ for the smell of fresh baked cookies.

~ for an awesome sunshine- soaked day at the ballpark. The UT Tyler Patriot Baseball Team held a “Strike Out Childhood Cancer “ game, and invited Gold Network of ETX families to be honored at the game. 14 year old osteosarcoma survivor, Corbin Glasscock, threw out the first pitch. It was a special day!

~ for Spring Break. Excited for a laid back week with the kids. No real plans, no schedule, just freedom from watching the clock. Lots of baseball practices and sunshine I hope.

Birdie and Bear love to watch baseball practice

~ for the life and legacy of our friend, Sophie. Sawyer only met Sophie once at the hospital, but they bonded instantly and he talked about her constantly.

She was a spunky and sassy and I think Tatum K would have been crazy over her. Sophie was stolen from her family by lymphoma in 2018 before her 3rd birthday. This Saturday she will celebrate turning 7, but in heaven with Jesus instead of here with her Mama and Daddy and little brother. Her incredible family has purposed to make her birthday a day of celebration and encouragement, a day to spread kindness and the love of Jesus in Sophie’s memory. They will take a massive toy donation to Children’s in Dallas to share joy with other kids in their battle. You can donate directly to Sophie’s mom, Shelby here www.paypal.me/ShelbySkiles. Or you can just find a way to spread kindness on March 19. Buy someone’s coffee. Make a meal for a sick friend. #domoreforsophie Happy birthday, sweet girl. We won’t ever forget.

This week I’ve just been super conscious of the stirring God is doing in my heart. I shared last week about feeling like I was at the beginning of coming out of the dark season of oppressive anxiety. I’ve continued to seek the Lord’s leading daily, and have experienced a closeness and a refreshing in His presence. My circumstances and my biology have not changed. Every problem and anxiety is still right there waiting for me, waiting to trip me up, waiting to steal my joy. But I am healthier than I once was. Stronger. I physically feel the armor of the God protecting my heart and my mind.

I was really struck by this Scripture in a new way this week. Philippians 4:6-7 says, “Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.” We may think of PEACE as being passive, the absence of conflict. I never thought about the PEACE OF GOD BEING A GUARD. Jesus is our peace, and He is actively protecting us. Watching over our hearts and minds, if we only will give thanks and ask.

There is so much stirring in my heart…what lies ahead I can scarcely imagine. But I’m thankful for this corner I’ve turned. Doesn’t mean I don’t still have my struggles, hard days, dark days. But instead of feeling like I am sleepwalking, I am alive. Instead of a spectator, I am engaged and ready to put my hands to the plow.

That’s something I learned from Sophie. Life is hard. God is bigger.

May you be encouraged, literally FILLED WITH COURAGE, this week.

Thanks for giving thanks with me.

“Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit.” (Romans 15:13)

“But above all these things put on love, which is the bond of perfection. And let the peace of God rule in your hearts, to which also you were called in one body; and be thankful. Let the word of Christ dwell in you richly in all wisdom, teaching and admonishing one another in psalms and hymns and spiritual songs, singing with grace in your hearts to the Lord. And whatever you do in word or deed, do all in the name of the Lord Jesus, giving thanks to God the Father through Him.” (Colossians 3:14-17)

“Oh, magnify the Lord with me, And let us exalt His name together. I sought the Lord, and He heard me, And delivered me from all my fears. Depart from evil and do good; Seek peace and pursue it. The eyes of the Lord are on the righteous, And His ears are open to their cry.” (Psalms 34:3-4, 14-15)

Hold fast to Joy

I am thankful:

~ for Rucker birthday season in full force. We celebrated Kora last Sunday,

and the Gavin is our Valentine’s Boy. He had a great day, starting with heart shaped pancakes (of course),

pizza for lunch, and taco salad and ice cream cake.

And today was my turn! A surprise latte from Colton, lots of thoughtful birthday wishes, a delicious salad from Piada for lunch, afternoon nap, and then a FEAST of Ruby’s authentic quesadillas

and my favorite homemade-salted-caramel-sauce-soaked-coffee-infused-chocolate-cake-topped-with-Heath-bits.

With all my Loves here at home. I couldn’t dream of anything better. Thank You Lord, for this family that I don’t deserve.

Tatum K said, “You have one more present, Mama!”

~ for Sawyer’s chapel character quality award: Generosity. Sawyer has such a loving and generous heart, the fact that he was chosen for this award was no surprise.

~ for a favorite special tradition: February 18 is International Eat Ice Cream for Breakfast Day, a special day when Gold Network of East Texas partners with families and friends all over to raise awareness of childhood cancer. We eat ice cream to support kids battling cancer, celebrate the survivors, and to honor the memory of our friends we lost too soon. We enjoyed a sweet treat as a family, and then we shared ice cream with Sawyer’s class at school (as well as his warrior classmate, Jase, and another HERO friend, Matthias).

Josh took ice cream to work to his team, Grandmommy organized an ice cream social at her school in Carthage, and pictures flooded in from all over East Texas from HEROES and their supporters. What an incredible community to be a part of!

~ for our first attempt at hibachi on the griddle. Chicken and veggie fried rice was a hit!

~ for the boys’ room finally completed! These boys are so excited: freshly updated room, baseball practices underway (we have a National and an Astro), and just the excitement of trying something new. It’s going to be so busy but such a fun season.

~ for a long-awaited project completion. Our master bath was one of our first makeovers when we moved into this house. Wall to wall carpet, dingy mustard walls and ceilings, discolored cabinetry, and a most unusual round wall with lots of sheetrock damage.

New tile and paint made a huge difference right away.

Last year’s stay-cation brought a new light fixture and textured paintable wallpaper in hopes of disguising the unsightly wall blemishes. But then I hit a quite literal design “wall.” I wasn’t sure what color to paint, and was not at all satisfied with how the wall looked. But this week I bit the bullet and went BOLD with a deep, almost black, charcoal in a matte finish.

And we LOVE IT! The wall dents and cracks are finally almost indistinguishable, and I’m digging the unexpected high contrast color. You’ve come a long way, baby!

~ for God’s protection. As you can well imagine, laundry is a neverending battle at our house. Picking up clothes, hanging up towels, sorting bins, stain spotting, soaking, washing, what to dry, what to hang, fluffing wrinkles, folding, figuring out who in the world each item belongs to, and then putting it all away…it is a round the clock, full on enterprise. Both machines are pretty much running constantly. This week was no different, but when i pulled a load out of the dryer, I thought it smelled bad. Couldn’t quite put my finger on it. I’m notorious for my inability to smell bad odors, so I was really questioning myself. The more I smelled each piece of the dry laundry, the more I decided it all smelled like smoke. I didn’t see anything amiss, but even with the dryer off for the rest of the day, the acrid scent got worse and worse. When Josh got home, we inspected the inside and the back of the dryer. Checked the vent for clogs or lint buildup. Nothing. But when he opened up the dryer, we couldn’t believe it. There were INCHES of lint inside the machine – and all of the underbelly was black – the whole inside of the dryer had been ON FIRE! Yet somehow, miraculously, it had self-extinguished!!! There is absolutely no explanation for this. BUT GOD!

~ for Mr. Giddyup and his brilliant mind for construction. We were certainly not planning to do a laundry room makeover, but that was suddenly on the agenda this week.

Laundry room before we purchased the house

We made the switch from our top loaders to front load machines, and the coordinating pedestals were one serious back order, not to mention PRICEY. So of course, Josh built a completely custom built in platform that tied in seamlessly with our existing cabinetry (and the custom reclaimed wood countertop he had installed last year).

I think the whole project from start to finish (from taking the first measurement to both the washer and dryer running) took less than 10 hours! His talent and “giddyup” truly amazes me.

~ and now I’ve never been so thankful to be back in my laundry room! An unexpected three day laundry hiatus (and multiple loads that had to be re-washed) makes for a SERIOUS EVEREST of stinkiness! But the new and improved setup is super functional and efficient, so I’m ALMOST caught up.

It’s a wild season, and I won’t lie and say it’s all glorious. Some days are still a battle to hold fast to the joy of the Lord. But every single day, I open my eyes and thank Him. Every day I remind myself that His plan, His purpose, His faithfulness, His forgiveness, His grace, His love is forever true.

Thanks for giving thanks with me.

“Give praise to the Lord, proclaim his name; make known among the nations what he has done. Sing to him, sing praise to him; tell of all his wonderful acts. Glory in his holy name; let the hearts of those who seek the Lord rejoice. Look to the Lord and his strength; seek his face always.” (Psalms 105:1-4)

“Do not grieve, for the joy of the Lord is your strength.”” (Nehemiah 8:10b)

“While there’s breath in my lungs, I will praise You, Lord. The joy of the Lord is my strength. The joy of the Lord is my strength. In the darkness I’ll dance, in the shadows I’ll sing. The joy of the Lord is my strength.” (“Joy of the Lord” by Rend Collective)

Ask

I am thankful:

~ for healing. Thank you so much for all the calls, texts, messages, and most of all the prayers. My hand has healed incredibly quickly and is doing far better than I ever could have expected. I’m hoping to be back to painting this week.

~ for leftover steak for the perfect steak tacos.

~ for sweet finds on my camera roll like this…

~ for a new favorite. Colton has been trying to introduce us to the authentic Mexican cuisine from Rubys. He finally treated us for lunch this weekend and it was easily an instant favorite. Absolutely divine.

~ for the best kitchen helpers.

~ for 200 letters: edited, re-edited, printed, folded, stuffed, and stamped. It’s been quite a task, but I’m excited to mail out an update to friends who have supported Gold Network of East Texas. We have awesome things on our hearts for 2022. Can’t wait to share more.

~ for the teeniest, tiniest baby ladybug we have ever seen.

~ for cool rain and warm sunshine. I love them both.

~for the blessing of being able to get the groceries we need. This week it took three hours and four stores, but we got it done. Couldn’t do it without my best little helper.

~ for the first day cold enough to wear a sweater!

~ for my own personal baking challenge! I have the honor of baking cupcakes for a precious couple, and I tried out my recipes so they could come and have a cake tasting. I enjoyed creating some different flavors, and am now armed and ready for the task of baking and decorating 200 more!

~ for good news and answered prayer for two dear sisters each walking through their own hard hard battles.

~for a fresh breath of hope. Sometimes we pray so hard and so long that we wonder if God will ever hear or if things will ever change. I found myself face to face with my own unbelief…that I have started doubting God. And He washed over me afresh that He is always working. Breakthrough is coming. He hasn’t forgotten.

This week I’ve been thinking about what it means to ASK. I woke up Monday morning and my YouVersion Scripture of the day was Matthew 7:7, ““Ask and it will be given to you; seek and you will find; knock and the door will be opened to you.”

Do we ask? I mean, REALLY ASK for what really matters? We bless our food and say our bedtime prayers and ask God to bless us when we need something. We lift up our friends when they are going through hard times, and we pray for peace in the midst of trouble. So maybe we do “ask”…but do we DARE to ASK BIG? Do we ask that the cancer be gone? Do we ask for radical change? Do we ask that the blind would see again and that the prodigal would run back home? Somebody told me this week, “Ask for what you want.” DARE WE actually do that? Isn’t that greedy? Foolish? Naive? Presumptuous?

The thing is, we have a good and perfect Father who already knows what we need, what’s TRULY BEST for us. And because He’s a perfect Dad, we can ask Him ANYTHING without fear, knowing He will give us HIS BEST. That doesn’t mean we’ll always get what we want, or even what we ask for. But we will get HIS BEST. So why not ASK? For in the faith, in the confidence, in the boldness that comes from asking, He continues to guide and refine our hearts, shaping our minds and desires to become more like His. We literally have NOTHING TO LOSE.

What’s your big ask? Do you dare?

Thanks for giving thanks with me.

“The preparations of the heart belong to man, But the answer of the tongue is from the Lord. All the ways of a man are pure in his own eyes, But the Lord weighs the spirits. Commit your works to the Lord, And your thoughts will be established.” (Proverbs 16:1-3)

“Or what man is there among you who, if his son asks for bread, will give him a stone? Or if he asks for a fish, will he give him a serpent? If you then, being evil, know how to give good gifts to your children, how much more will your Father who is in heaven give good things to those who ask Him!” (Matthew 7:9-11)

“He who did not spare His own Son, but delivered Him up for us all, how shall He not with Him also freely give us all things?”(Romans 8:32)

“For the Lord God is a sun and shield; The Lord will give grace and glory; No good thing will He withhold From those who walk uprightly. O Lord of hosts, Blessed is the man who trusts in You!” (Psalms 84:11-12)

The After

My thoughts this week are a little different, so bear with me…

September is over. It is truly the busiest season of my life. As you may well imagine, life with 9 crazy kids, 2 rowdy dogs, a nonprofit, and a small business is going to be busy year round. But Gold Network’s pivotal events in September and the daily seeking out of opportunities to promote Childhood Cancer Awareness Month have turned into a full time job.

And then, all of a sudden, the calendar page turns and September is over.

So many ask me, “Are you recovering? Getting rest finally? Are you glad it’s all finally done so your life can go back to normal?” And the answer is an unequivocal “YES!”

For many reasons, this September was exceptionally hard for me. It hit me this week how this whole abrupt halt after a season of intensity is such a mirror of the perceived “end” of our cancer journey.

During treatment, there is no letup. Clinic, port access, labs, chemo &/or radiation, therapies, in the car, fevers, ER, back in the car, isolation, neutropenia, lose the hair, regrow the hair, lose the hair again, spinal taps, scans, bone marrow biopsies, nausea, steroid rage, pain, insomnia, more fevers, more ER visits, more hospital stays, more chemo, another 200 miles on the interstate…. Lather, rinse, repeat. That’s just what life looks like for the months or years on treatment.

People observe from the outside, “That looks really intense.“ “I don’t know how you do it.“ We don’t know either. But we don’t have a choice. (Although I DO actually know how we do it…His Name is JESUS.)

And for some, the cycle never ends. Some children have chronic or recurrent cancers that never go away. They stay on chemo indefinitely, and are closely monitored by specialists. Others have significant impairment from their cancer (or more often, their treatment) and they must endure life-altering long term therapies, surgeries, and/or disabilities.

And then there are the friends we’ve lost.

That pain never goes away. The loss never goes away. The hole never goes away.

But for many of us, cancer treatment comes to an end. There’s a party at the hospital, a bell is rung, and people change our label from “warrior” to “survivor.” Ding-dong-DONE! Everybody celebrates a hard-fought victory, and now we can all get on with our lives.

But is it really that simple? As simple as the turn of a calendar page?

I can only speak for myself. It wasn’t (and still isn’t) that simple for me. Treatment felt like being on a terrifying tightrope for three years, surrounded by a coaches and trainers and safety harnesses and a net on every side. And when treatment is over, all the safety gear and nets are packed up and put away and everyone goes home from the circus, but you’re left up there on the tight rope. Alone.

Some of “your people” aren’t your people anymore. There’s no more meal train, no more T-shirts, no more support bracelets. Everyone else’s life has moved on, and honestly, you’re GLAD for them! You wouldn’t wish this journey on anyone, and you’re glad they can’t understand the silent screaming that still wakes you up at night. What if the cancer comes back? What if the doctors missed something? Where did that bruise come from? How do you know if his platelets are low? Does he look pale? You’re supposed to be trusting God, but you feel helpless and terrified. Not to mention how the most random “nothing” can send you spiraling and gasping for breath.

And what of the other casualties from this war that’s over-except-that-it’s-not? What’s the condition of your extended family? Your marriage? Your other kids? How are your finances? Did you take care of yourself while you were fighting for the life of your child?

All I’m trying to say is that it’s never really over. We march on because we have to. We turn the page of the calendar and put our yard signs back in the garage. The polka dots come off the bus, and the gold shoes go back on the shelf until next year.

Everybody’s walking through something. Everyone goes through their own personal refining fire and comes out changed. Not everybody walks with a limp that you can see. Some people suffer inside and you would never know it. So we have to be kind to one another. It’s OK if their healing process doesn’t look like yours. Not everybody can just “get over it”(whatever their “IT” is). Extend more grace than you think they deserve. Ask good questions. And then LISTEN. Instead of telling someone you’re going to pray for them, PRAY FOR THEM! Everyone is looking for the right place to take their broken pieces.

Love people well. Your people and other people’s people. And let’s help one another carry our broken pieces to Jesus.

I will give thanks to the Lord as long as I have breath in my lungs. He has never left me. In the crisis. In my questions. In my wrestling. In the waiting. In the after. He is FAITHFUL.

Thanks for giving thanks with me.

“The righteous cry out, and the Lord hears them; he delivers them from all their troubles. The Lord is close to the brokenhearted and saves those who are crushed in spirit.” (Psalms 34:17-18)

“Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.” (2 Corinthians 1:3-4)

Golden

It was GOLDEN.

This week has been an exercise in holding on to Jesus with both hands.

I don’t even have words to describe the week, except perhaps to compare it to balancing 83 spinning plates while riding a rollercoaster backwards in a lightning storm every single moment. Highs and lows, sometimes simultaneously.

But we got there.

The day was beautiful. The weather was perfect. God’s presence was everywhere.

And I am thankful.

Countless news interviews this week. This was KLTV with the Rodriguez family

Go Gold at TISD Early College High School

Such a special girl. Aneesa presented GNET with the school’s donation

Adorable awareness cupcakes made by the girls

Thanks for giving thanks with me.

“From the end of the earth will I call unto thee, when my heart is overwhelmed: Lead me to the rock that is higher than I.” (Psalms‬ ‭61:2‬)

“Truly my soul finds rest in God; my salvation comes from Him. Truly He is my rock and my salvation; He is my fortress, I will never be shaken.” (Psalms 62:1-2)

“The Lord himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.”” (Deuteronomy 31:8)