Vision

I am thankful:

~ for those sweet moments that make me laugh.  Tatum was crying, but was trying to settle herself down when her nose started running. Horrified, she started crying harder, “Mama!!!  Now my NOSE is CRYING!”  That girl keeps me on my toes.IMG_4507.JPG

~ for a better-than-expected first week with new puppy, Birdie.  She is sweet, and Bear is getting used to her…he is alternately playful and annoyed.   She is sleeping much better and more tuned-in to potty training than Bear was when we first got him.  She’s certainly doing better on the potty train than Miss Tatum K.  I guess perhaps Mama is a little more motivated with the dog…the puppy’s accidents aren’t contained by a diaper, and Tatum is at least slightly LESS likely to poop on my rugs….IMG_4313 2IMG_4524

~ for some of the most beautiful wood we’ve ever worked with as Giddyup & Whoa.  It is truly the prettiest, chippiest, most awesome wood, and it’s so special to the family we are making signs for.  Such an honor to be entrusted with their memories. 896D690F-D861-41FC-A14D-00296B1DD3EE.JPGIMG_4631.JPG

~ for Cooper being home safe from an incredible trip to Camp Eagle in West Texas.IMG_4636.JPGIMG_1380 2.JPG 

~ for AWESOME new GO GOLD t-shirts.  Go check out Laurel & Cotton to get yours.  Thank you so much to Melissa Vance for your heart to help our HERO families!IMG_4484.jpg

~ for another new and beautiful dream realized.  Last September after Tyler Gold Run, Josh and I started talking about how badly we want more people to understand the vision of Gold Network of East Texas.  Over the last 5 years, we have focused on reaching every family we could find, and raising funds by asking the local businesses we know to be race sponsors.  But we have come to realize that focusing on Tyler Gold Run is so short-sighted.  MOST people don’t want to hear about a race.  MOST people aren’t interested in being a race sponsor.  But I genuinely BELIEVE that if MOST people hear about these families, about the reality of childhood cancer, and about the incomparable bravery of these kids, that they will get on board with us and we just might change the world.   So we decided we wanted to have a dinner.  We envisioned inviting friends and family and others from the community to our home and just sharing our hearts.  When we started making a list, I told Josh that I thought it MIGHT be too big for our house.  To which he replied, “I don’t care!  I’ll stand on the table and talk!”  But as it all actually began to unfold, we decided to book the Foundry, a downtown coffee shop with additional venue space.  We reserved the middle floor which held 78 people, and we prayed that we weren’t being overly optimistic.   We booked a professional videographer, booked a caterer, booked a cellist, and called it the Vision Dinner.  And a week before the event, we had to move our reservation to the 3rd floor, because we had OUTGROWN  the capacity!   The Vision Dinner was Tuesday evening, and it was SO SPECIAL!  We heard from several of our Hero moms and from brave 8th grader and Ewing’s Sarcoma survivor, Aneesa, who read her inspiring letter to her school principal asking her school to Go Gold.  We shared what GNET had done over the past 5 years and our vision for the future.  I looked out at the crowded room of kind, supportive faces around the carefully decorated gold and black tables and felt as though my heart would burst.  I even had the special blessing of having Colton there: he had lined up several of his friends from work who all VOLUNTEERED their time to be our head servers. GNET received many donations that night, but more importantly, I genuinely believe eyes were opened and hearts were touched. _MDJ6866_Original_MDJ6975_Original_MDJ7030_Original_MDJ7108_Original_MDJ7168_OriginalIMG_20200303_181013276_OriginalIMG_20200303_182059657_Original

I will never forget that night. 

~ for the times when the Lord tells me to trust my gut.  Wednesday evening, Sawyer started complaining of a headache and sore throat.  Thermometer revealed 101° fever.  We gave him some Motrin and tucked him in to bed, fighting the inevitable anxiety that creeps in when he runs fever.  Years of conditioning to head straight to the hospital for a temp higher than 100.4° is hard to let go of.   We know the unlikelihood of fever meaning cancer relapse, and we know viruses come and go, and they just have to run their course.  Next morning, 103°.  I gave lots of fluids and Sawyer did not resist being confined to his bed.  That evening, his fever spiked back up to 104° and a rash began to spread across his chest and back.  Sawyer looked at himself and said, “Mama, I look like salami!”  IMG_4554.jpgI still tried not to overreact.  I know rashes can pop up with fevers.  But I just couldn’t shake my concern.  I was able to get the VERY LAST appointment for Friday afternoon at the pediatrician.   And am I ever grateful that the Lord wouldn’t let me let it go: sweet boy tested positive for strep throat and scarlet fever! IMG_4562.jpgI hate to think how sick he could have gotten if we had waited until after the weekend!  BUT GOD!  With antibiotics, the fever quickly subsided, and after a day he was released from quarantine.  Salami Boy is still pretty spotty and itchy, but the maddening red rash is improving and his sore throat is gone.   And thankfully no one else shows signs of getting sick.  Thank You Jesus! IMG_4609.jpg

~ for gloriously good news for my friend after terrifying news, an agonizing waiting period, and a very serious surgery.   Praying for healing mercies as she turns the page on a scary chapter. 

~ I am thankful for the GOAL of Daylight Savings Time, and I know I will enjoy lighter, brighter evenings this summer.  BUT TONIGHT I AM MISSING THAT HOUR AND I AM SO VERY TIRED. 

~ for the wide open schedule of Spring Break ahead.  Praying for lots of grace and patience and getting along with one another and sunshiny days for playing outside. 

My heart is so sad tonight.  Another innocent child was lost to cancer.  Two in a month.  Two more families that should be watching their babies grow up, and instead, they can only wonder what might’ve been.   And yet another family I love is on a trip to soak up some last memories with their sweet little one before they have to say goodbye.  Father God, I love You and I trust that You are good, even though no part of me can understand.  Help me to fix my eyes on You and not on the chaos and brokenness of my surroundings. 

Hold close the ones you love.  Please visit our newly updated website www.goldnetworkoet.com to see the phenomenal video.  If you are moved to give, please do so.  Or contact me about getting involved.  Childhood cancer is not going away.  Help us do more for families living their worst nightmare. 

Thanks for giving thanks with me. 

“Teach us to number our days, that we may gain a heart of wisdom.”  (Psalms 90:12)

“For I know that my Redeemer lives, And He shall stand at last on the earth;” (Job 19:25)

Hope, Joy, and Generosity

What a jam-packed week!  I was just so whupped at the end of last week, really had the wind knocked out of me.  So much heaviness.  And you know what… none of those circumstances have changed. But even those sad, harsh realities are overshadowed by the goodness and faithfulness of God.  He keeps pouring out His goodness.  His mercies really are new every morning. 

I am thankful:

~ the best testimony of all – Sawyer the Warrior had a PERFECT checkup at his quarterly ACE Oncology appointment, and our brave boy remains CANCER FREE!  Thank You Jesus!!!   As usual, Sawyer hopped up in Miss Sharon’s phlebotomy chair all by himself and laughed while she drew his blood. 9016C527-90CE-45D8-8B8F-27A8CBD0826A.JPGBB0774A4-7AD1-450B-8757-8F8CB23820BD.JPG

I am always freshly astounded and in awe of the courage of this incredible boy.  His appointment went smoothly, and once the labs came back with the “all clear,” Josh and I were finally able to breathe again.   That part never gets easier.  Every time they draw his blood, we wait to hear the best news or the worst news.  BUT GOD.  This visit we packed in lots of extra-special visits on top of the clinic appointment.  Josh and I were joined by my friend and Gold Network of East TX co-creator, Paula Kimmey, to present a check from GNET for $10,000 to an acclaimed pediatric oncologist from Children’s Hospital, Dr. Ted Laetsch, to assist funding his groundbreaking CAR-T therapy which uses genetically modified immune cells to treat Acute Lymphoblastic Leukemia. Gold Network Photo 2.JPG9DD02FBC-58F9-4066-BC27-23CCE5E25B5C.JPG

Not only were we THRILLED to present this check to fund research at our own hospital (that’s about as LOCAL as it gets!), but it was even more meaningful because Dr. Laetsch was on the team of oncologists that cared for Sawyer when he was treated for Infant ALL!  What a surreal full-circle moment!   We also delivered a New Diagnosis Survival Kit to one of the new families we learned of last week, and we were introduced by a nurse to YET ANOTHER East Texas family – that makes 3 new diagnoses just last month.  Sawyer was able to meet the girl, several years his senior, and smiled sweetly at her in her hospital bed and told her simply, “Be brave!”  What an ambassador of HOPE! 

~ for a delicious, yet oddly romantic, candlelit lunch at Campisi’s.  We ordered from there several times while in the hospital, but had never been to the restaurant, so it was the perfect place to celebrate a great day.  Their BBQ chicken pizza is THE BOMB!  (Sawyer was not a fan, he stuck with cheese.)58B2E3C1-54CE-440E-8429-90A4879FD2D9.JPG

~ for Aunt Gina, who ran the morning and afternoon Rucker bus route while we were gone to Dallas and spent the day with Hurricane Tatum K.  And for her delicious gift of homemade Amish friendship bread for breakfast!IMG_20200224_112050147_Original.jpgIMG_4064.JPG

~ for a pretty successful first week of Intro-to Potty-Training with TK.  She is excited to use her little potty chair and has had only a couple of unfortunate mishaps in her pink Peppa Pig panties.  She is very proud of herself and never lets me forget her Skittles. IMG_4098.JPGIMG_4119.JPGIMG_4120.JPG

~ for sweet Zoe, who received the “Joyfulness” Award at chapel.  Love to see those brown eyes sparkle.   Her name means “life,” and I pray she always lives a life full of the JOY of the Lord. IMG_4073.JPG

~ for a lovely evening of fellowship prompted by some pretty exciting conversations.  We’ve been talking a lot about heaven lately, and one day last week Sawyer enquired, “What about people who have never heard about Jesus?  Do they get to go to heaven?” What a question!  I explained to him that Jesus is the ONLY way to heaven, and that that’s why it’s so important that we share the gospel with people who haven’t heard it.  And then he replied, “I REALLY want to go to heaven!  But I know it’s important that I really understand before I can ask Jesus into my heart…”

The rest of the conversation went like this

“Well, you have to believe in Jesus”

“I do!”

“You have to want Him to be your boss.”

“I dooo!”

“You have to want to serve Him your whole life.”

“I DOOOOO!”

You can only imagine this mama‘s heart.  We told Sawyer that maybe it would be a good idea for him to think of some more questions and sit down and talk about them with our pastor, Brother Joe.  He immediately hopped up excitedly, “Can we write them in a notebook?  I can’t read… but will you write down my questions for me, Mama?”

So of course I did.  When I told Sawyer that usually people make an appointment to meet Brother Joe at his office to talk, he promptly replied, “Nope!  I want him to come to our house.  For dinner.”  So that’s exactly what we did.  Brother Joe and Miss Becky came over, and we had a great visit.  Sawyer had some incredible questions: “Why did God want to make us?” and “Why doesn’t God make us obey him?”  That night at bedtime, he said it made him happy that Brother Joe and Miss Becky had come over for dinner.  He said “I liked asking him my questions,” and things have been left at that for now.   We will let Sawyer take the lead, and follow up when he brings it up again.  I never want to push or manipulate God’s perfect timing.  I’m excited about all the things that the Lord is stirring up and storing and building in his honest, tender, loving heart.  I can only imagine what the Lord has in store for him.

~ for Brother Joe and Miss Becky being extremely gracious in eating the meal we lovingly prepared for them.  Fried catfish.  Ask me if either Josh or I have ever fried catfish before.  It was on sale so we had wanted to try it.  It’s always a FABULOUS IDEA to cook a dish you’ve never attempted before for guests.  At least the brownies were good.  

~ for a tremendous progress on the refresh in Carson Grace‘s room / my studio.   Josh and I finished the herringbone wood-block backsplash and added some bright pops of color and gold for personality.  We had one wall with some sheet rock damage, so we created a fun and functional galvanized magnet board.  We still have some paint touch up to do, but for all practical purposes, the room is complete!  Carson Grace FaceTimed with me to check it out, and she is excited to get home and see it in person.  I look forward to sharing the space with her.  I love having a creative place to create!IMG_4275.JPGIMG_4282.JPGIMG_4178.JPGIMG_4268.JPGIMG_4269.JPGIMG_4283.jpg

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~ for the wonderful opportunity to attend Generosity Tyler, an event hosted by Jasper Ventures designed to encourage and inspire living generous lives.  I have to admit that I arrived at the event pretty much swallowed up by anxiety.  I felt very out of my element, very inadequate, and very overwhelmed.   I sat in my car in the parking lot for a while, taking my anxieties honestly to the Lord.  He reminded me who I am in Him, and that there is no need to ever be anyone else. It was a lovely event.  Paula and I heard testimonies from people who shared how they have personally been stretched and have experienced a paradigm shift on what it means to be biblically generous.  How the Lord wants us to be so generous WITH OUR LIVES that people find it shocking.  We had some great conversations with the people at our table and ate some delicious food. And at the end of the event, the generous hosts of Generosity Tyler generously gifted us the beautiful floral centerpieces from all the tables for our upcoming event!  I left so amazingly inspired and encouraged. IMG_4179.jpgIMG_4177.jpg

~ for a surprising, y’all-are-going-to-shake-your-heads-and-call-us-insane new addition to our Tribe.  Meet Birdie. IMG_2301.JPGIMG_3792.JPGIMG_4253.jpgIMG_4264.JPG

If you need me this week, I’ll be potty training a puppy and a 2 year old, sending my Freshman off on a camping trip with his class, and prepping for and hosting a Gold Network dinner for 100 guests.   Can’t wait to share all about it.  Thank you for your continued prayers for the hurting people around us: the newly diagnosed, the ones who have lost and are losing loved ones, the ones who may be keeping their pain hidden from anyone.  Let’s walk in joy, hope, and generosity this week!

Thanks for giving thanks with me. 

“Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you.” (1 Peter 5:6-7)

“Though you have not seen him, you love him; and even though you do not see him now, you believe in him and are filled with an inexpressible and glorious joy, for you are receiving the end result of your faith, the salvation of your souls.” (1 Peter 1:8-9)