Go GOLD for Kids With Cancer

I am thankful:

~ for conversations overheard in the car:

  “I really wanna go to Massachusetts!” 

“Well I really want to go to Chinese!”  

“I want a really cheap car.”

“No, you can’t have that. Cheap cars are really, really expensive!”

~ for my Coop.  I got a pretty terrifying phone call from Josh Tuesday evening.  Cooper got hit hard during football practice and at the moment I was called, there was an ambulance and firetruck on the field.  Thankfully, a trip to the ER confirmed that nothing was broken. Only a hyperextended hip and some torn ligaments.  We are disappointed that he will miss a few weeks of playing time, but so very thankful that the injury wasn’t worse.

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~for my first Starbucks Pumpkin Spice Latte of the season.  And it was even better because Colton showed up with it on my doorstep!

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~ for a GOLDEN WEEK.  Oh my goodness, it was insanely busy and so much work.  I ate, slept, and breathed Gold.  Very little sleep actually.  The “to-do” list always runs and runs through my head and won’t let me rest.  But God gave me so much grace to keep it all rolling.   And blessed me with such wonderful and thoughtful encouragers who lift me with prayer and kindness.

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So thankful for my incredible husband, who shares the vision and drive, and is willing to put his hands to the work behind the scenes.  I envisioned a wall of our Hero kids’ pictures, and he built exactly what I described.  IN ONE AFTERNOON!  He is just amazing.  And he’s a great sport about all the little gold sparkles that have spread from one end of our house to the other.  

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~ i’m thankful that I have the most wonderful and generous people in the world to work alongside.  And the absolute most incredible Childhood Cancer community to serve.  I met several families for the first time on Thursday. Many of them I’ve only corresponded with by phone or email. I’ve seen the pictures of their precious children, and prayed for them, but it is still so overwhelming to actually meet face-to-face and hug one another.  It is the worst, best group of people to belong to. 

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puppies donated by My Minky Co

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~ for such a special night at Go GOLD Tyler.  We had more than 20 Childhood Cancer families represented, and so many loyal supporters.  Our Heroes and their families walked the Gold Carpet, and we released balloons for the children who are now in heaven with Jesus.  And I genuinely believe families are realizing that they are not alone.  That others understand their pain, that others really care, and that their children and their personal struggles MATTER.  Awareness and family connection is spreading, and that has been exactly our hope and prayer for Gold Network of ETX.  You can watch our HERO video here.

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~ for a successful online auction and for the remarkable generosity that landed that stunning painting EXACTLY where it was meant to be.   God’s orchestration is just indescribable!

~ for the best hamburger I have ever had in my hamburger-loving-life!  Thank you C Rojos!  

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~ for endless cups of coffee and a day of pajamas-on-the-couch on Friday (the day after Go GOLD).  I Could. Not. Move.   Seriously, it took about 3 days to recover. 

~ for the very best surprise!  My doorbell rang, and it was MY GIRL!  Carson Grace came home for the holiday weekend!  Oh how I’ve missed her, how we have all missed her!  And it makes my heart happy to know she’s missed us a little too!

~ for such a special family day today.  We wanted to get to attend ONE MORE Texas Rangers baseball game in our beloved Globe Life Park before everything is moved over to the new state-of-the-art venue that will replace it.  That ballpark holds such special memories.  Josh and I went when it was known as The Ballpark at Arlington on one of our first dates.  It was both of our first Rangers game.  We’ve been with the kids, with youth groups, and celebrated birthdays there.  We’ve toured the park behind the scenes and run the bases.  We’ve sat in the premium seats and the nosebleeds.  So today was the perfect day.  EVERYONE was able to go, so we started the day with a hearty Dad’s Special Breakfast, and headed for Arlington.  Oh, let me tell you…it was H-O-T!  (We know that will be the one thing that we won’t miss when we visit the new stadium. It will be air conditioned.)  But we ate our packed picnic and snacks and cheered for our team.  We even bumped into one of Sawyer’s oncology nurses!  I know the kids didn’t REALLY have that great a time: it was way too hot and a lot of sitting.  But we were together.  And it really meant something to Josh and I to be there all together one last time.  And I’m so thankful the kids are SUCH great sports.  They were a little whiny and squirrely during the game, but afterwards, they couldn’t quit thanking us for “the best day ever!”  We will all laugh at the memory of the hottest, stickiest, stinkiest ballgame of all time!  

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Today September 1.  September is Childhood Cancer Awareness Month.  I know, people are like, “oh brother, here she goes again.”  I get it.  Kids with cancer is a real downer.  Trust me.  I agree.  And I didn’t used to know or care ANYTHING about childhood cancer.  Until July 23, 2014, when I was told, “your baby has cancer,” and I became another statistic.  It wasn’t my life until all of a sudden, it was. 

Childhood cancer is the leading cause of death by disease in children in the United States.  700 children are diagnosed each day.  And 1 out of 5 children diagnosed with cancer will not survive. It takes more lives than AIDS, Asthma, Cystic Fibrosis, and Diabetes combined.  Yet somehow, out of the $5 billion federal budget of the National Cancer Institute (NCI), less than 4% is designated toward research specific to all the types of pediatric cancer combined.  That’s why you’ll hear parents of kids with cancer use the phrase, “more than 4.”

So what can you do?

1) GO GOLD!  Awareness is the first step.  If you are reading this, childhood cancer has come across your radar.  Whether it was because of Sawyer, another special child, or a friend of a friend of a friend…you have entered the world of pediatric cancer.  What you do with it is up to you.  Be creative: put up a gold wreath, paint your nails gold, carry a gold purse for the month of September.  Wear gold shoes, or switch to gold shoelaces.  Start wearing gold (or your Sawyer shirt, or whoever you are supporting) every Friday, and get the conversation started!  Use social media!  Use Sawyer’s picture, or find your own!  I’m so blessed by several of you who have already changed your profile pictures!

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2) If you want to support a national organization on behalf of Childhood Cancer, I recommend Alex’s Lemonade Stand Foundation and St. Baldrick’s Foundation.  Both of these focus solely on pediatric cancers, and primarily research.   If you want to support a non-profit for East Texas kids and families, I am personally a fan of Gold  Network.  

3) Register for Tyler Gold Run on September 21. Start a team. Run it, walk it, or just show up for lemonade and to cheer on the participants!  Proceeds support East Texas families as well as Childhood Cancer research.

4) DO SOMETHING!  Pray and ask God to show you what is your part.  Maybe you’ll be the one to visit kids in the hospital. Or take a meal to a cancer family. GIVE BLOOD!!  Kids with cancer need numerous life-saving blood transfusions throughout treatment.

Thank you for letting me share my heart with you.  Five years ago, I didn’t know or care about childhood cancer.  And in an instant, everything changed. Now, the Lord has allowed me the honor of being an advocate for Sawyer and so many others.  My most important message is and will always be sharing the love and hope I have found in Jesus Christ.  So to me, sharing that Love with hurting families while raising awareness for these precious children is the perfect combination.  I challenge you: GO GOLD for SEPTEMBER!!  

Thanks for giving thanks with me!

“And I heard a loud voice from the throne saying, “Look! God’s dwelling place is now among the people, and he will dwell with them. They will be his people, and God himself will be with them and be their God. ‘He will wipe every tear from their eyes. There will be no more death’ or mourning or crying or pain, for the old order of things has passed away.” He who was seated on the throne said, “I am making everything new!” Then he said, “Write this down, for these words are trustworthy and true.”” Revelation 21:3-5

Back to School Daze

I am thankful:

~ to be DONE BACK TO SCHOOL SHOPPING.  It only took me 3,647,447,262 trips to 78,226 stores to get what everyone needed. 

~ for our wonderful, kind teachers at Grace Community School, and how thrilled each of the children are with the classroom they were placed in.  I love the aroma of eagerness and hope at the beginning of the school year.  There is just so much promise: new friends, new skills, new adventures.  There are few things that thrill my kids more than strapping on a brand spankin’ new pair of tennis shoes and a 86 pound bulging backpack to go see friends they have missed all summer and meet their teachers.  

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~ for a good first day of school.  Everyone popped out of bed with a grin, gobbled up fresh baked banana muffins for breakfast, and doodled up in their favorite outfit to start off their new year.  (I may have chosen Sawyer’s shirt…)  We read our morning devotional, like always, and prayed over our day and our family and our teachers, like always.  Josh headed off to take Cooper to his first day of high school while I walked into the elementary school with 6 of my babies.  And walked out with just one.  I’m infinitely grateful for a school filled with people who love Jesus and love our family, and who give a whole lot of grace to this mama who has a very hard time letting go.  But God.  

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~ and as if that were not enough, Wednesday was the day to drive Carson Grace back to ETBU, this time for good.  Tatum K and I made the drive with her, and when we arrived, the dorm was HOPPING!  When we moved her into her dorm before her mini-mester 2 weeks ago, there were just a handful of students on campus.  But this week was Tiger Camp, ETBU’s Freshman Welcome Week.  All of Carson Grace’s suite-mates were there, and it was great to meet them and their parents.   I can already tell they are a really special group.  We did the few last updates to her room, went on a quick grocery run, and a hurried Subway lunch, as I had to rush back to Tyler in time to pick up Littles from school.  This meant I didn’t get to participate in the parent part of Tiger Camp, attending the first Chapel service of the year with Carson Grace.  But I know God’s timing is better than mine, and I trust that it was best for me to get on the road when I did.  Oh, it was so hard to drive away.  I could tell though, that she was excited and ready.  Much more so than the first time we dropped her off, all alone in the dorm.  This time her room and the campus were already familiar, and she was surrounded by classmates ready to dive in right beside her.  Hard hard for Mama, not so much for my girl.  And that’s how it’s supposed to be, praise God. IMG_5764.jpg

She has sent lots of pictures since Wednesday: scavenger hunts, team challenges, and community service projects.  She’s making lots of friends and looks like she’s loving it.  She and her camp group went to a local church this morning together, and classes start bright and early in the morning.  Proud of her.  But I sure do miss my girl.  I’ve spent a lot of time in her room this week, thinking about her, praying for her.  (I’m not crying, YOU’RE crying….)

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~ for traditions.  If you know me, you know I’m big on traditions.  Every year on the first day of school, we go to our very favorite snow cone shack in Tyler, Shivers.  Tatum K shared her piña colada snow cone with me…she loved her “pink-alada”!

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~ for kind friends.  Thoughtful friends.  For old and new friends.  For truth-telling-even-when-it-hurts friends.  For tried-and-true, gone-through-the-ringer, here-for-the-mountains-and-the-valleys friends.  

~ for steady Giddy up & Whoa work.  I truly love to paint, and our little home business is such a blessing to our family.  And I needed the diversion.  Thursday was even harder than Wednesday with the kids gone.  On the first day, taking Carson Grace to Marshall took the whole day.  I was too busy to think about anything. (WHICH WAS MERCY).  Thursday was a different story.  It was a different kind of quiet.  Not a TRUE quiet, because Tatum K is a wild little fireball and a constant chatterbox.  I know this year will be a sweet time with just my Tater Tot at home.  But for now, the empty house is echoey.  Too much space.  As much as my Tribe drives me crazy and I’m always exhausted with their questions and their squabbles and their needs…they are MY PEOPLE.  And I miss them when they’re gone.  So anyway, it was a blessing to have 5 sign orders that needed my attention during Tatum’s naptime.  And I’m pleased to say I got them all done!

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~ for a good evening and meal with Colton.  The Littles were thrilled to swim with him and climb all over him.  Always good to spend some time with my boy. 

~ for a nice start to our Gold Network Toy Drive for the prize closet at Children’s Hospital.  A group of sweet ladies all went out and purchased nearly 100 toys and donated them in honor of one of their friend’s birthdays!  What a great idea!  Last year we donated more than 1400 toys to Children’s.  We are collecting toys through the month of September.  

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~ for excitement brewing over all our upcoming Gold Network events.  August 29 is Go Gold Tyler, our annual Childhood Cancer Awareness night on the Tyler Downtown Square.  I’ve been reaching out to our cancer families and have been thrilled by the overwhelmingly positive response!  It is so special to have all these Hero families together.  And then Tyler Gold Run is coming up September 21.  For our big 5 year celebration (how can it be 5 years!?) we are thrilled to have added a 10k route and moved to a new, larger park.  I am always amazed at how our friends and family and the community rise up in support of all these brave kids and their families.  Please consider being a part of these special events, or donating toward the cause. 

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IMG_5513.jpg~and this is just INCREDIBLE!  One of our Hero families has a cousin who is an amazing artist.  She created an original watercolor painting and has DONATED IT FOR AUCTION TO GOLD NETWORK!!!  This priceless painting takes my breath away.  Please check out the auction and bid or donate if you feel led.  The auction is open until August 29.  Click here for details.

~for good baseball memories with my Love.  Josh is one of the biggest Texas Rangers fans that has ever lived, and he has passed this passion on to his family.  I learned early in our marriage that if I was going to have any quality time with my husband from April until October, I needed to learn to speak baseball.  So I asked a few questions, and it was his greatest delight to teach me the ins and the outs of the game.  So this week, it was very special to glue ourselves to the TV screen to watch a momentous milestone for our all time favorite player, Josh Hamilton, as he was inducted into the Texas Rangers Hall of Fame.  Josh is one of the greatest talents to have ever played the game, but we love him because of his story.  He has battled drug and alcohol addiction for his entire career, and although he found salvation in Jesus Christ, he has continued to fall back into those self-destructive patterns.  But seeing him back on the field, hugging his old teammates, and hearing his bold and honest speech that gave all glory to the God who continued/continues to love him in the midst of his failures….we cried our eyes out.  It. Was. Awesome.  He closed his 14 minute speech with these words of encouragement for when we get knocked down, “Don’t you dare stay down. The God of the universe sent His Son to die so that we have the right to GET BACK UP IN JESUS!”

Our friend Harold needs your prayers.  He was allowed to go home from the hospital Wednesday, only to have hydrocephalus symptoms return Thursday, causing his parents to rush Harold back to Dallas for his FIFTH surgery.  Please pray for healing and wisdom for the team of doctors treating him.  And for grace and strength for his precious family.  Thank you for continuing to lift up the parents and family of sweet Lucas, who went to heaven last week.  Someone I love is recovering from a dreadful injury, and 3 family members are battling cancer.  So many people hurting.  Oh how I hate cancer.  Jesus come….

Friends, life is hard. It is hard and good and beautiful and horrible and excruciating and glorious.  Live well.  Love large.  Give freely.  Forgive.  See people.  Pray for one another.  Share Jesus.  

Thanks for giving thanks with me.

““A new command I give you: Love one another. As I have loved you, so you must love one another. By this everyone will know that you are my disciples, if you love one another.””  John 13:34-35

“Therefore, since we have a great high priest who has ascended into heaven, Jesus the Son of God, let us hold firmly to the faith we profess. For we do not have a high priest who is unable to empathize with our weaknesses, but we have one who has been tempted in every way, just as we are—yet he did not sin. Let us then approach God’s throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need.”  Hebrews 4:14-16 NIV

Home Sweet Home

I am thankful:

~to be HOME! We had such a wonderful trip to the North, and made so many incredible memories, but there is truly NO PLACE LIKE HOME!

~to be out of the car!!!!!! Mercy, 40+ hours is a loooooong time! It was a long drive to Kansas City and then on to Winona, MN over two days. Then we spent a minimum of an hour each day in the car visiting various family members or attractions. 3 hours further North to the cabin in Wisconsin. And then, after such a tiring, jam-packed week of activities, the drive home was TORTURE. It seemed like we would never get to Texas, and once we did, the miles just went on forever. So thankful to be back to our home, our bed, our pets, and our coffee pot!

~for both old and new memories. I truly can’t put into words how meaningful it was for me to revisit places from my early life, and especially to do so with the people I love the most. To show my kids where I went to elementary school and high school. They have seen the pictures of their mama with big 80’s hair as a cheerleader, so it actually meant something to them. It meant something to Josh to see the beautiful surroundings of Decorah, Iowa where I went to college, the dorm where I met my friend Katie. Especially with our own daughter leaving for college soon. (Their running joke all week was that I had rebelled from an Amish heritage and gone to Corn College.) I showed them the treacherous winding gravel road that I rode my bicycle down to Grandma Grace’s house, road with them in the fields where I first learned to drive my Grandpa’s antique tractor, and introduced them to the delicacy of fresh and deep fried CHEESE CURDS! Many of these places also hold memories that are not at all sweet and warm. But to walk the old paths, now as an adult, and to see through the eyes of a new creation in Christ, AND to do it with my family…it was emotional and healing and beautiful. Josh and I even recreated a picture we had taken the first time I brought him to Minnesota to meet my family, 21 years ago. My how we have changed – I scarcely recognize those kids. But I wouldn’t trade it for anything.

~ for priceless connections with the kids with their cousins, aunts, uncles, grandparents, and great grandparents.

~ for Chick-Fil-A!!! Oh how we missed you! We hit Sulphur Springs on the way home just in time for dinner, and the car erupted in cheers when we pulled up! Tatum K was SO DONE with the car at that point, but she perked up for chicken and french fries!

~ for the best neighbors on the planet. Our sweet friends across the street lovingly tended to our menagerie all week: 2 dogs, cat, guinea pig, and tank of lake fish. Another friend mowed our yard just because. Another maintained our pool so that it was clear and sparkling when we returned. This weekend, Josh was working on a faulty sprinkler in the yard and a neighbor came over with a shovel and spare parts and jumped right in to help! What a blessing to live side by side with such caring folks.

~ for new Dekalb Heublein Seeds hats for all! The kids hardly ever take them off. I took a picture to show my dad, and Sawyer insisted that I take one of him “wif this fing in my mouf, like a REAL FARMER.”

~ for unexpected, unbelievable generosity.

~ for the eager, loving hearts of my kids. “Mom! Come look! There is a beautiful Heavenly Glory outside! Come take a picture!” They are faithful and dedicated prayer warriors for any need, from a tummy ache to cancer. They love to help and cook and they give tremendous foot rubs. And they worship Jesus at the top of their lungs! Our trip served as a powerful reminder of how very special and unique and loving they are.

~ for reaching Sawyer’s 5 year “Cancerversary.” If you follow my Facebook or Instagram, you already read my post on July 23. If not, here you go:

“Cancerversary. So much has become hinged on this day. BC – Before Cancer. AD – After Diagnosis. 5 years ago life as we knew it ended. “Your baby has cancer.” The words fell into the hushed ER room, and time stopped. From that moment on, every single day was lived knowing it could quite literally be the last. I stopped making plans. I lived in a strained tension between the faith I clung to and the grim reality that slapped me in the face every time I walked the halls of the Oncology floor. Fast forward through 3 years of blood transfusions and spinal taps, bone marrow biopsies and adult chemotherapy, of administering shots in our bathroom and my baby taking his first steps in a blow up pool at the hospital.  Port placement. Port removal. A near fatal drug overdose/reaction. 2 Christmases in the hospital. Dozens of ER visits and hundreds of trips from Tyler to Dallas.  But also relationships built, lives changed, prayers answered. A front row seat to see the Body of Christ rising up and meeting the needs of the broken.  We’ve clung to each other and clung to Him for every breath.  And God has shown off. His Glory has surrounded us, overwhelmed us, overshadowed us. And today Sawyer is beautiful and bright and strong and healthy. If you didn’t know, you’d never dream he had fought this battle his whole little life. He is proud of his scar on his chest, announcing, “I don’t need a port anymore. Jesus healed-ed me, and NO MORE CANCER!” The doctors said he would experience developmental delays. But God. The  doctors gave him 24 hours to live. But God. BUT GOD!!!!”

The end of summer countdown has begun. 2.5 weeks until Littles go back to school. Which means 2.5 weeks until Sawyer will go to school EVERY DAY (as opposed to MWF last year). He’s so excited, so ready. I wish it wasn’t so hard for me to let him go. I’m so proud of him, and so thankful to God for allowing him to grow up to be so healthy and bright. He is truly a warrior, an overcomer. Lord, help me to trust You with his life today the way I did when he was a frail, sick baby. Help me to be as brave as Sawyer.

Brave indeed. Next Sunday we will load up and move Carson Grace to Marshall to start her journey at East Texas Baptist University. She is going early to take a week-long mini-mester as a part of her Music Major requirements. My heart isn’t ready to let her go either. I have cried about every 7 minutes all week. I know it’s time, I know she’s ready, and I’m so proud. But she’s my baby girl. Lord, help me to remember that she is Yours, not mine.

Please continue your prayers for sweet Lucas and his family.

And I’m sad to share ANOTHER new diagnosis in East Texas, 3 year old Harold, with an aggressive malignant brain tumor. Little Harold has already endured 2 brain surgeries this month, with a 3rd expected this week. Please lift these precious families to the Lord, for healing and for comfort in the midst of their worst nightmare.

Hug tightly the ones you love. Life can change in an instant. You are faithful Lord, and You are good.

Thanks for giving thanks with me.

“I lift up my eyes to the mountains— where does my help come from? My help comes from the Lord, the Maker of heaven and earth. He will not let your foot slip— he who watches over you will not slumber; indeed, he who watches over Israel will neither slumber nor sleep. The Lord watches over you— the Lord is your shade at your right hand; the sun will not harm you by day, nor the moon by night. The Lord will keep you from all harm— he will watch over your life; the Lord will watch over your coming and going both now and forevermore.” Psalm 121:1-8

Generosity

What. A. Week.  I am utterly spent, and my heart is full.  Generosity is definitely the word ringing in my heart this week.

I am thankful:

~ for one of the very best GCS elementary Spring Concerts I’ve ever seen (and I’ve seen a couple).  The 4th and 5th graders (including our Samantha) sang worship songs in several languages, played melodiously on their recorders (insert winky face here), and played instruments as well as used sign language.  I was so moved by their clear, young voices lifted in praise, and I was struck by how much I knew they were blessing their Heavenly Father’s heart.  I can’t express how grateful I am that our children have had the privilege of growing up in the community of GCS.  There’s no such thing as a perfect school: there are highs and lows, strengths and weaknesses.  And our kids are far from perfect.  But I know that they are getting SOAKED IN JESUS, at home, at school, at church…and I know that I know that I KNOW that the years my babies have spent at GCS, engulfed in the faithful partnership of prayers, instruction, and encouragement, are shaping their tender hearts for their future.  And God continues to make a way where there is no way, through His unparalleled and unexplainable generosity.  There are no words. 

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~ for a rip-roaring good time for my little cowgirl!  Zoe had a blast at 1st grade Rodeo Day with her classmates: roping steers, scooping cow patties, barrel racing.  She chowed down on delicious homemade chili and dirt pudding.  Such a fun day.

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~ for a special rite of passage this week: Tatum K’s very first Sunday School class.  Our beloved Miss Linda has taught every one of our babies at the age of 2, and her gentle hugs and tender instruction have welcomed each of them into her classroom.  Absolutely surreal to see little Tatum K with the flag and her stickers and her little crown.  My heart. 

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~ and then for the event we have been eagerly anticipating and planning for for months: the Children’s Cancer Fund Gala and fashion show!  It was quite a production to gather all the kiddos from the ends of the earth, and pack the bus with all their gear.  (We can’t even make it to CHURCH on time…we had to make it to Dallas by 3 o’clock.  The struggle is REAL!)  By some miracle, we made it, checked into our complementary room at the palatial Hilton Anatole hotel, and took Sawyer to the check-in area.  The cancer kids are the VIPs of the event, and all the real action takes place backstage, where parents are NOT ALLOWED.  Instead, they are each assigned to a “buddy,” a staff member from Children’s Hospital.  How thrilled was this mama to find out that SaSa was going to be in the capable hands of our beloved Nurse Brittney!  It’s always hard for me to let him go, but I trust her COMPLETELY.  Sawyer had the time of his life backstage with Brittney: he played games, got new toys, and made crafts. He met some pretty cool celebrities: Chuck E. Cheese, Spider-Man, Batman, and Wonder Woman.  Oh, and Troy Aikman, Roger Staubach, and Tony Romo were there too, but they were not nearly as exciting as the superheroes. 

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Out in the ballroom, Josh and I had the rest of the Tribe, all doodled up in our finest.  Incredible silent auction items, including the original paintings created by each fashion show child, filled the lavishly decorated atrium, and beautiful people were everywhere.  No detail was left overlooked for this “Evening in the Garden,” from the stunning floral wall backdrop for 3-D pictures; the intricately embossed programs, menus, and auction paddles; to the wisps of smoke hanging on the massive runway, flanked with impressive cascades of flowers suspended from the ceiling overhead.  Our children’s eyes could not get any bigger!  (Nor could mine!)  One of the highlights of the evening for Josh and I was watching our children get their first taste of fine cuisine. The menu was over the top. Our kids are in no way picky eaters, they are very adventurous and great sports. But this was definitely quite a stretch for them… 2 year old Tatum K loves salad, and she dove right into her plate like a big girl with a big fork! She stabbed a juicy red beet and popped it in her mouth.  But it immediately came right back out!  I think she thought it was a tomato, her favorite.  Beets apparently are not as palatable.  Zoe wasn’t too sure about the peppery watercress. Tatum DEVOURED the juicy filet mignon once I diced it for her, while the other Littles were very entertaining in their attempts to saw off hunks of steak and then laboriously chew and chew and chew and chew it.  Kora’s face wore every variety of disgust as she sampled each course, from the goat cheese in the salad to the roasted brussel sprouts and finally the edible flowers on the panna cotta dessert.  Gavin, Big Kids, and Mom and Dad on the other hand, happily chowed down every decadent course with gusto.  The Littles managed to get by on dinner rolls and the bits of fruit garnishing the dessert.

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It was awesome to watch each of the models, kids of all ages in various stages on and off treatment, walking with celebrities and superheroes and community helpers down the runway. Some were shy, and some worked the stage with confidence and swag.  Sawyer came out with his escorts, members of the Dallas Fire and Rescue team.  Click here to check out the video of his runway walk…he owned that stage with long strides and tipped his hat to the crowd like a pro. It was priceless.  I hope you can hear the announcer, who quoted Sawyer, “I have no more cancer, because Jesus healed-ed me!”  The wonderful folks at CCF even had that phrase embroidered on a blanket for him!  

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But no matter the setting, the beauty of the decorations, the grandeur of the hotel surroundings or the prestige of the celebrities in the room…the inescapable fact was that we were here because of childhood cancer.  Our family never could have afforded the tickets to attend the event, even just to watch Sawyer.  Our attendance was made possible because of the personal kindness of the Executive Director and the generosity of another cancer family who had lost their daughter to cancer several years ago.  This night wasn’t just a high society event for entertainment, but Children’s Cancer Fund is committed to the mission of funding cutting-edge childhood cancer research, staffing Dallas Children’s with top notch Child Life Specialists, and they have been supporting families battling childhood cancer for 31 years!  Initial reports show that more than $1 million was raised at the Gala!  Just astounding.  It was a very special, truly unforgettable evening for our family. 

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~Saturday morning was ANOTHER special event, the 8th Annual Collin Boyd Strikeout 4 Cancer Baseball Tournament.  Collin is a 2x childhood cancer survivor here in Tyler, and his dedicated family hosts the tournament every year to raise funds to support other newly diagnosed families in East Texas.  Like us, they have become passionate about bringing beauty and outreach out of the ashes of their personal pain, and they work tirelessly to involve the community in this incredible event. This year’s beneficiary was sweet Georgia Crim.  In one day, the tournament, home run derby, food sales, and silent auction raised more than $30,000 which is directly gifted to the Crim family!  GLORY TO GOD!  Please continue to pray for Georgia.  She had a successful surgery to implant her port and her first round of chemotherapy this past Tuesday.  Miraculously, she was able to attend the tournament on Saturday, and was mostly smiles (she and Sawyer are such sweet buddies).  But it’s a long road ahead.  And please also be in prayer for Baby Lucas, who goes in for his 4th infusion tomorrow.  Jesus, we ask for HEALING for these precious babies!

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People hint vaguely sometimes, not necessarily with ill intent, that families with terminally or chronically ill children “sure get to do some amazing things.”  And yes, sometimes that’s true.  Sawyer has met sports stars, gotten autographs and tremendous gifts, had VIP treatment, and our family was given a free trip to Hawaii.  Unbelievable.  Ask me if 1% of these “side benefits” are worth holding my son down while a 1 inch needle is pierced in his chest ONCE.  Let alone monthly or weekly for 3 years.  The countless nights in the hospital, the dreadful drugs and side effects, the PTSD and strain on marriage and family….ask any parent of a medically fragile child if it’s worth a fast pass at Disneyland or a backstage meet-and-greet with Taylor Swift.  There are no “perks” that come with a sick child.  Don’t get me wrong, we are genuinely grateful for the unique opportunities we have experienced because of the compassion and generosity of others.  But it’s not a fair trade for a healthy child.  Not by a long shot. 

Let’s love one another GENEROUSLY this week.  Everyone is walking through something.  Everyone can benefit from an extra measure of grace and compassion.  Maybe you are the answer to someone’s prayers. 

Thank you for giving thanks with me. 

““I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”” John 16:33

“Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be the glory in the church and in Christ Jesus throughout all generations, forever and ever!  Amen.”  Ephesians 3:20-21